QUIET DAY

Quiet day for this family. Philip continues to have a minimal reaction with this round of increased medication. Another increase will happen tomorrow evening. We continue to be hopeful that this one will also go well. I am really relieved to see him smiling and getting out a little. He remains very balanced and grounded. He takes all of the setbacks in stride and appreciates the good days. He truly is a pleasure to be around.

Accredo the medication distributor called today to get an inventory of all of the medication and supplies. Yesterday I had cleared out some shelves and took everything out of boxes. They products are now neatly lined up and easy to keep track of and count. I put together daily packets for the next 2 weeks. This makes it easier for me to keep things organized. There are things that need to be done daily, things that need to be done three times a week and things that need to be done weekly. I think it helps to have it well set up in advance. All of the people at Accredo have been wonderful. They have been helpful, supportive, very informative, and timely.