These days are starting to drag along. Philip doesn’t really make much sense. He just babbles most of the time. He does ask for water, but I can’t give it to him. If he aspirates it could cause pneumonia. That would take him off the transplant list. It seems like such a little thing of which to deprive him. It just breaks my heart that I can’t give him just a little water. They swab out his mouth, but it is not satisfying to him. He does remain sweet and cooperative with the nurses and staff.
The surgical Physicians Assistant(PA) came in to make sure we had all of the information needed for transplant. Then the doctor came in to make sure we had all of the information, and make sure we have a Rabbinic presence available.
He is currently getting some kind of a connection installed into his body so that they can start dialysis. Dialysis will give us 4 more points and put him higher on the transplant list. The problem is that one can get too sick to get a transplant. We just wait and worry.
Please pray with us.