ABOUT THE SAME

Philip remains about the same. He is minimally responsive on occasion. He is sometimes restless and sometimes sleeps quietly. His kidneys get better and then worst. They are treating the …

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DIFFICULT DAY

The symptoms remain the same. There is absolutely no improvement. I am getting concerned because he seems to be getting weaker and weaker. Today he had two episodes with vomiting …

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THE SAME

Philip’s relief from suffering was temporary. We were so happy to see him feeling better yesterday, that we didn’t think about the fact that it would be a temporary fix. …

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NOT TODAY

Good news was not in the cards today. Philip remains nauseous and still has a headache. We had been hopeful that his condition would improve so that we could leave …

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AGAIN

Yesterday’s increase in medication has been very hard on Philip. He has had a bad headache, nausea and vomiting. As an individual person I know it is all about the …

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QUIET DAY

Quiet day for this family. Philip continues to have a minimal reaction with this round of increased medication. Another increase will happen tomorrow evening. We continue to be hopeful that …

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GOOD DAY

Philip has done really well with this increase in medication. Last night he was a little nauseous and today his left leg is jumping a little when he sits. I …

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AT HOME

We are home. I am glad we divided the days leaving the hospital and driving home. It was not a difficult trip, but Philip is very weak and tired. He …

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THE PUMP

The process is not going as easily as we had hoped. The medication is causing a bad headache and dry heaving. These are all reactions to the medication. The doctors …

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NOT TODAY

We thought today was going to be the day they would put in the central line and pump. When I arrived at the hospital early this morning, they were busy …

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RESULTS

The procedure went well, but the results were very disappointing. We have another hurdle to jump over and we will. The physicians will need to put in a pump with …

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GETTING READY

Medical, medical. Today, we simply took care of some of the medical ends that needed to be tied up. We have an appointment for Philip’s hepatitis B shot tomorrow. We …

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GOOD NEWS

Off to Chapel Hill and the pulmonologist. Good news, Philip’s heart looks smaller. The doctor is going to try and schedule him for a cardiac catheterization Monday. It is all …

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THANK YOU

I would like to take this opportunity to thank all of the people who have been involved in helping and being supportive of Philip. The calls, visits, notes and outings …

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A HAT

We woke up early and ran to the lab to get Philips prescribed lab work done. The phlebotomist was wonderful; she was able to get the blood on the first …

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HUMOR

Philip seems to be stabilizing. We know he is in end stage liver disease, but for the last few days he is doing fine. He is not well enough to …

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Phil, None of us knows what life has in store for us, but being able to face the challenges with the grace and dignity that you have exemplified is quite …

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AT HOME

What a day it has been…I slept through the first call from the doctor. When I finally reached him he advised me that they were releasing Philip so that he …

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