We had some really great news today as a cardiac catheterization indicated that Philip’s pulmonary hypertension has come down way below where the doctors wanted it to be in order for him to be placed on the transplant list. Unfortunately that good news was overshadowed by the fact that Phil is now struggling to breathe. They are trying to find out why and hopefully the family will have a better idea of what’s going on tomorrow. As you can well imagine, the emotionalism of this roller coaster ride is sometimes hard to bear. I know Randy feels she has to be strong so she can continue to advocate for her son. She is relentless in getting him what he needs and making sure each member of Phil’s health care team is on the same page, working together for a positive outcome. But it is not easy. This is exactly why Randy and I are creating our website www.PatientAction.com which hopefully will be up and running as a patient advocacy website in a month or two. It will teach everyone how to be a comparable advocate for them self or someone they love in the health care setting. It is Randy’s and my deepest wish to empower all health care consumers so that their needs can be met in any health care setting. The impetus for the website came from Randy’s 25 + years of care giving… and fighting the system in order to get Phil’s needs met. She is awesome & inspiring! I want her on my team the next time I am sick! In the meantime, please! please! please! keep Phil and the entire Sperling family in your prayers. Everyday he is with us is a new day filled with hope… and your prayers can continue to keep that hope alive.