The day has been full of ups and downs. We thought he was doing better because his white blood count was normal. It was our impression that meant the infection was under control. The blood pressure is running low, apparently that means that there could be another infection brewing. His body is unable to get rid of enough fluid without his blood pressure diving. He is being kept alive with machinery to get him to transplant. Today they had to make him inactive on the transplant list. It will not take long to get him back on if his physical condition improves. We sit with him and offer our love and encouragement. He doesn’t say much because he sleeps more of the time and there is a mask on his
It is sad to think about how little we have to offer our child. He has the best medical care he can get, yet we sit here powerless. We pray and we pray.