The days seem to be running together. We are always worried about his blood pressure, white blood count, platelets, body temperature, dialysis, infection. I can no longer remember which one to worry about first or what the last report was. I have taken to writing everything down so that I don’t have to depend on my memory. Philip is in good spirits. He seems to sleep less and less all of the time. They staff tells me part of this is from the confusion of just being in the ICU which has action all of the time. There are moments when the conversation is cute and funny and the next moment he seems confused. Shelly and I just sit with him and respond to what ever he presents. If he is confused and doesn’t realize that he is confused we just let it drop. If he gets confused and knows he is confused we give him the information to understand what is happening. If he is being cute and funny we laugh and make jokes with him. Everything is moment to moment. We are certainly learning how to live in the moment.
Today they are concerned because he seems to have a bladder infection. They bantered back and forth about which antibiotic to use. The problem seems to be that if an infection gets into his blood stream they can’t take him into the operating room. His platelets are still low and the line that gives them information on his blood pressure became disconnected. They would use a regular blood pressure cuff, but for some reason, it doesn’t work on Philip right now, because it gives readings at both extremes.
Philip continues to be a fighter.